“Because he was the only infant in the world to present with ciHHV-6 and cardiomyopathy, his doctors were at a loss for what to do. They decided not to risk a heart transplant for fear the virus would reactivate and attack a new heart. He passed away in my arms on his three week birthday.” – Diana Stone @ dianawrote.com
My heart hurts just re-reading this story.
Diana has been one of my favorite bloggers for a really, really long time. At least, it feels like a long time. She has a daughter Zoey’s age so when she writes about her, it pretty much feels like I’m reading about my own little girl. I’ve followed her journey since she was pregnant with her twin sons, who are now in heaven. When she lost her third son to a virus that attacked his heart, I wept for her.
Three sons. All in heaven.
You can read more about her story here, but what I really want to talk about today is the HHV6 Foundation that is working really hard to help Diana get answers for Kaden, and to help other families. Diana has set up a Go Fund Me campaign to help the foundation with their research.
In a nutshell: A lot of people carry the virus that attacked Kaden’s heart, and they don’t even know it until it’s too late. The HHV6 Foundation is trying to figure out what medications taken during pregnancy trigger the activation of ciHHV6 cells. They have already figured out part of the puzzle, they just need $5,000 to finish their study. The fact that they have even made it this far is HUGE. You’ll see on the Go Fund Me page that they are on the right track to answers, so please check it out and read more of the story. If you can donate, every dollar counts. If not, please just pray for the foundation that is working hard to solve this, and for families affected.
And please, pray for the Stone family.
Donate: Research for ciHHV-6 activation